HEALTH

Soaring drug prices spark legislative debate and action by Utah non-profit

Jan 8, 2020, 5:42 PM | Updated: Jan 10, 2020, 12:11 pm
Martin VanTrieste, president and CEO of Civic Rx, listens to Dan Liljenquist, chairman of Civic Rx,...
Martin VanTrieste, president and CEO of Civic Rx, listens to Dan Liljenquist, chairman of Civic Rx, as he speaks during a ribbon-cutting ceremony to officially open the companyÕs Utah headquarters in Lehi on Thursday, April 18, 2019. Civica Rx is a revolutionary national non-profit drug company that will help patients across the nation by making generic medications accessible and affordable. (Steve Griffin, Deseret News)
(Steve Griffin, Deseret News)

Listen:

SALT LAKE CITY, Utah — It was about three years ago when Dan Liljenquist first started to piece together the idea of creating a first-of-its-kind drug company.

The Senior Vice President and Chief Strategy Officer for Intermountain Healthcare had spent a majority of the decade consumed by the minutiae of patient care. During that time, he realized that health care providers were operating in an imperfect system, but perhaps more troubling was the corporate and personal greed that was prohibiting any kind of solution.

“It was the price gouging on the EpiPen that really bothered me,” explains Liljenquist. “Things like Martin Shkreli, ‘Pharma Bro,’ who jacked up the price of a drug by 500 percent.”

He thought about a way to ensure that vital drugs would be more available and affordable to those who need them. Liljenquist knew there needed to be an alternative supplier of life-saving medication in order to challenge the drug monopolies that had a stranglehold on the market.

“When you’re desperate for a product, and the supplier knows it, the best way for them to maximize their profits is to just restrain supplies,” he explains.

Patient is dead last

His idea took form in 2018 with the creation of Civica Rx.

The new nonprofit drug company was to be headquartered in Utah with the intention of reducing chronic generic-drug shortages and price gouging.

“In some ways, it’s really sad that the market, in the private interests of shareholders, often puts the patient dead last in that equation,” Liljenquist said in October.

And many times the patients who are being overlooked are the individuals with the smallest room for error.

At the time of their first delivery, Liljenquist stated a need to address the patients who are making life-and-death decisions.

“We’re starting at hospitals, because that’s where shortages are so risky for patients and because we know and see those risks every day,” he explained.

Civica Rx eventually was fully formed with the backing of seven leading healthcare providers, including Intermountain Healthcare, and three major philanthropies.

They established headquarters in Lehi, and the nonprofit made their first delivery on October 2, 2019, when they delivered vials of Vancomycin to Riverton Hospital, which is an Intermountain Healthcare facility.

Vancomycin was the companies’ first targeted drug because it’s used to treat such a variety of bacterial infections and had previously been in short supply.

Progress hard to ignore

Liljenquist got emotional at a press conference while reaffirming the nonprofit companies mission.

“There’s no shareholders, I’ll never make a penny off of Civica, nor will any of the people involved in its governance,” he said.

While the initial delivery was local and only pertained to one specific drug, the nonprofit had a much larger objective they were working toward.

“The mission of Civica is broad enough to address problems in the market, not just in hospitals, but across the United States,” said Liljenquist.

He went on to provide some specific benchmarks for Civica Rx.

“Our goal is to have forty medications next year, understanding that this problem is really impacting hundreds of drugs that we use every day in hospitals,” he explained. “We’re working to systematically fix those problems drug by drug.”

And their progress is hard to ignore.

Marc Harrison, M.D, the president and CEO of Intermountain Healthcare, provided a recent update on the growth of the non-profits in a recent Deseret News feature.

“Forty-five health systems are now members of Civica Rx, and they represent more than 1,100 hospitals in 46 states,” he explained. “This first delivery is being followed up by 15 additional Civica Rx medications in production this year. These medicines are used daily by hospitals in emergency care, surgery, pain management, and in treating hypertension. Forty medications are expected to be available from Civica Rx by the end of 2020.”

A dream job hanging in the balance

Brooke Bergman knows some kind of change is needed.

Brooke Bergman sits at a hairdressing station at Lather Salon in West Haven, Utah.

She’s only been diagnosed as a type-1 diabetic for about 20 months, but during that time her entire world has been flipped upside down.

“I kind of just got thrown into the pool and had to learn how to swim,” she explains.

Brooke is most comfortable in a salon and thankfully that’s where she gets to spend a majority of her time.

Working as a cosmetologist at Lather Salon in West Haven isn’t just her dream job, it’s her life.

As a transplant from northern Virginia, she hasn’t just found employment at the salon, but she’s truly found a family.

That’s what makes the past year-and-a-half so scary for her.

“As a young adult, being thrown into this, it’s devastating,” says Brooke. “It’s not fair. It’s definitely a financial burden for me.”

A financial burden she can hardly afford as a hairdresser in her 20’s.

“I love my job so much. I’m so happy with my life in this job, but I don’t have health insurance that’s offered thru benefits. I’m self-employed,” she explains. “That’s something that I have to worry about in the future and that’s scary.”

Because of that, she’s extremely concerned that she might have to leave her dream job to afford the drug that keeps her alive.

“Right now, I’m only a couple of years away from being off my parents insurance,” says Brooke. “So I know that’s not going to last forever.”

 

Enter Rep. Thurston

While the ingenuity of a Utah-based nonprofit is impressive, state legislators know it isn’t the cure-all solution to a systematic problem.

Perhaps more than ever, conversations about possible solutions to price gouging prescription medications are taking place on the floor of the Capitol.

One of the champions of this cause is Rep. Norm Thurston.

Thurston, a Republican representing District 64 in Provo, is a Princeton grad who received both an MS and Ph.D. in Economics.

Additionally, he is the director of the Office of Health Care Statistics.

He, more than most politicians at the state level, is inundated with the burdens of health care costs on everyday Utahns.

“There are some big blocks in the road for some of these families,” explains Thurston. “One is affordability; it’s too expensive. Another one is access to care; they can’t get in to see their primary-care providers.”

According to him, one of the major obstacles for most people is a lack of information about their options.

Thurston says the state is already providing a number of assets that often times are underutilized.

“There are resources in our community, as well as community health centers,” he explains. “If you’re low-income and don’t have access to an endocrinologist or primary care provider, try your community health center.”

But these are only temporary solutions, and Thurston knows a long-term answer is needed.

Out-of-the-box idea

One of his major focuses has been the cost of insulin and other diabetic supplies since he has a personal connection to the problem.

“I have a family friend who died because he was rationing his insulin,” says Thurston. “[He] wasn’t taking enough, went into ketoacidosis [and] passed away.”

In late November, Thurston held a press conference at the state Capital where he introduced several bills for the 2020 General Session to mitigate some of those costs.

Some of his ideas and bills, he admits, are more outside the box. Specifically, he highlighted a first-of-its-kind statewide bulk-purchasing plan for diabetes medications, including insulin.

“Right now we have thousands of different purchasers, each buying insulin for a few people here [and] a few people there,” explained Thurston. “But what if we could pool all of our purchasing power into one agency or one entity.”

He says it may be a bit of a longshot to get that hashed out in General Session, since there’s no other state that has implemented a similar system, but nonetheless, he believes it’s a possible creative solution to the problem.

“It doesn’t have rebates, it doesn’t have coupons, it doesn’t have deductibles, it just has insulin at this price,” said Thurston. “I’ve been working on it for several months now, it’s not an easy thing to figure out.”

While other ideas he presented are more aimed at systematical change.

“I think the most exciting one is the permissibility under IRS rules for health insurance to cover diabetes in their preventive tier,” he explained.

To make that happen, he says it can’t just be a political effort.

“Employers should ask, ‘Can that be a benefit for my employees?’” said Thurston. “‘I have an employee with diabetes. It’s important to me they stay healthy so they can work.’”

We want to hear from you.

Have a story idea or tip? Send it to the KSL NewsRadio team here.

Today’s Top Stories

Health

FILE - A doctor loads a dose of Pfizer COVID-19 vaccine into a syringe, Thursday, Dec. 2, 2021, at ...
Aimee Cobabe

Bill banning vaccine passports heading to Utah Senate

A bill to ban vaccine passports is heading out of the Utah House and into the Utah Senate. The bill is similar to a failed bill from 2022.
2 days ago
A bill on transgender healthcare — banning transgender-related surgeries and puberty blockers for...
Eliza Pace, KSL TV and Aimee Cobabe, KSL NewsRadio

Utah Senate approves changes to transgender care bill, passes on to Gov. Cox

SB16 bans gender-confirming surgeries for minors and also places a moratorium on puberty blockers for minors.
5 days ago
Havasu Falls spills into the water pools below in Supai, Arizona, in October of 2016. Photo credit:...
Forrest Brown, CNN

Grand Canyon’s Havasu Falls to reopen to visitors after 3-year closure

 (CNN) — Havasu Falls, one of the most intriguing features of the Grand Canyon system, will be reopening to visitors after a three-year closure caused by the Covid-19 pandemic. But it’s with a catch. The reopening is scheduled for February 1; however, access will be limited initially to a certain, small group. People whose previous […]
5 days ago
White carnations representing each of the 1,746 unborn babies that were aborted in Utah in 2022 are...
Allessandra Harris and Simone Seikaly

Speeches, silence, during Pro-Life Utah memorial at the Capitol

About 100 people including Utah lawmakers and religious leaders attended the memorial on Wednesday, Jan. 25, 2023.
6 days ago
 A mental health clinic will reopen on Thursday after a carbon monoxide leak sent at least 17 peop...
Michael Locklear

Carbon monoxide poisoning at central Utah clinic hospitalizes 17 people

The Central Utah Counseling Center in Ephraim was evacuated a week ago after a problem with an old furnace was discovered.
7 days ago
a row of guns are pictured...
Mark Jones

KSL at Night: How do we solve gun violence?

KSL at Night hosts Taylor Morgan and Maura Carabello speak with Clark Aposhian, chairman of the Utah Shooting Sports Council about gun violence.
8 days ago

Sponsored Articles

Banner with Cervical Cancer Awareness Realistic Ribbon...
Intermountain Health

Five Common Causes of Cervical Cancer – and What You Can Do to Lower Your Risk

January is National Cervical Cancer Awareness month and cancer experts at Intermountain Health are working to educate women about cervical cancer, the tests that can warn women about potential cancer, and the importance of vaccination.
Kid holding a cisco fish at winterfest...
Bear Lake Convention and Visitors Bureau

Get Ready for Fun at the 2023 Bear Lake Monster Winterfest

The Bear Lake Monster Winterfest is an annual weekend event jam-packed full of fun activities the whole family can enjoy. This year the event will be held from January 27-29 at the Utah Bear Lake State Park Marina and Sunrise Resort and Event Center in Garden City, Utah. 
happy friends with sparklers at christmas dinner...
Macey's

15 Easy Christmas Dinner Ideas

We’ve scoured the web for you and narrowed down a few of our favorite Christmas dinner ideas to make your planning easy. Choose from the dishes we’ve highlighted to plan your meal or start brainstorming your own meal plan a couple of weeks before to make sure you have time to shop and prepare.
Spicy Homemade Loaded Taters Tots...
Macey's

5 Game Day Snacks for the Whole Family (with recipes!)

Try these game day snacks to make watching football at home with your family feel like a special occasion. 
Happy joyful smiling casual satisfied woman learning and communicates in sign language online using...
Sorenson

The Best Tools for Deaf and Hard-of-Hearing Workplace Success

Here are some of the best resources to make your workplace work better for Deaf and hard-of-hearing employees.
Team supporters celebrating at a tailgate party...
Macey's

8 Delicious Tailgate Foods That Require Zero Prep Work

In a hurry? These 8 tailgate foods take zero prep work, so you can fuel up and get back to what matters most: getting hyped for your favorite
Soaring drug prices spark legislative debate and action by Utah non-profit